[Michelespreemies]

As many of you know, my son Connor has vwD type 1 severe and has been on Stimate for quite awhile.

Well about 1 1/2 weeks ago he went for a DDAVP infusion because he had 7 bleeds in 13 days. He has had several bleeds today and passing clots the size of quarters. I called the Hema and he now is adding Humate-P (finally) and going through a 10 course of Amicar (again).

My concern is his blood levels have been so low lately and all the bleeds are just draining him. He takes his multi-vitiman with extra iron everyday, but what else can I give him to boost his energy and get his levels back up to normal?

[QueenAngie]

Is he eating green leafy veggies, high in iron?

If they are nose bleeds, is he using vaseline on a q-tip each night to keep his nasal lining moisturized?

That is the only thing I have to share. I'm certain somebody else will help with you.

(((Hugs))) and prayers for you DS!