Death of a child
After a six and a half year struggle with a body that just would not work right, a second battle with pneumonia and a nasty virus, the toughest kid I know earned his wings last week. I am honored to be the first to hold him and the last to hold him prior to his last breath. In a cold hospital PICU room, my wife and I were able to provide a peaceful and safe place for his last moments. While sitting on my lap, Luke drifted to sleep.
We still have not realized the full extent of Luke's passing. But that is due in large part to Luke himself. He taught us how to be strong, to smile when you are crying inside, to go on no matter how bad it is and to give his big sister the childhood she deserves. Luke changed our value system for the good. Objects and circumstances that most find important are no longer important or tragic. Family and health now top the charts.
We have been crying over Luke for six and a half years. Every seizure, every therapy session, every surgery, every medicine given has broken our hearts on a daily basis. We gave Luke every ounce of energy and fought many battles with doctors, insurance companies and the school administration. We would do it again.
I will never stop crying.
Although he never said a word, Luke communicated in his own way. He inspired many, teachers, therapists, friends, doctors, his sister and his parents. Everyone fell in love with Luke at first site. About 500 people came to pay their last respects to a 6 year old boy. We are very fortunate to have great local support.
Luke, you are now free. Run fast. Play hard. And know that we will carry on your teachings.
I know it is ok to cry. Thank you for being you.
I love you and miss you terribly.
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