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  #1  
Old 10-23-2005, 06:06 PM
Nice1704
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Join Date: Dec 2004
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Smile Hi I have a special lil one I love very much

.....
  #2  
Old 10-23-2005, 06:18 PM
lanichan
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Join Date: Dec 2004
Location: Arizona
Posts: 425
Default Re: Hi I have a special lil one I love very much

Hi Sandy! I also have a child with needs. My 2 1/2 year old son has Autistic Disorder (classic autism) and SID (sensory integration dysfunction). We just learned of this maybe 5 months ago. At this time, he is in a wonderful program at the University of California for Autism Research FT, and is in Speech and Occupational therapy, as well as an ABA program that the State provides. It's defiantly been a hard road and my days are full, sometime too full! It's great to know there are other mom's out there going through the same challenges! I'm sure I'll be posting my up's and downs here and hopefully a lot of exciting news!!
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  #3  
Old 10-23-2005, 06:19 PM
~*Tinkerbell*~
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Join Date: Mar 2003
Location: Oregon
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Default Re: Hi I have a special lil one I love very much

Hi I know what you are going through. I have ADHD and I most likely passed it down to my girls..If you ever feel like talking just let me know I know pretty much about it having to grow up with it and all....
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  #4  
Old 10-23-2005, 06:24 PM
lanichan
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Default Re: Hi I have a special lil one I love very much

Originally Posted by NavyWife19
I have ADHD and I most likely passed it down to my girls....
My dh has it too, although it has got better of the years (adult years) the Docs say that his history could be why my son has Autism (not proven though). They are starting to link ADHD with it being on the Autism Spectrum, possibly. Scary!
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  #5  
Old 10-24-2005, 09:03 AM
~*Tinkerbell*~
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Location: Oregon
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Default Re: Hi I have a special lil one I love very much

my dad had it and out of 3 kids with my mom 2 of us got it...when I mom has it usually all the kids get it but I'll have to wait and see......
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  #6  
Old 10-25-2005, 10:01 AM
onehotmama
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Join Date: Dec 2004
Location: Arkansas
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Default Re: Hi I have a special lil one I love very much

My son had learning disability's and is still slightly behind. When he was 13 months old we were recommended to a specialist for his behavior. He is very touchy, will break at any moment and for any reason. He is also very needly and latches to me like crazy, but he doesnt like to be huged or touched, just to be around me. At first the doctor suspected autism but rulled that out, after some tests they found out he was several months behind in several areas. He was given therapy for sensory, eg. rubbing different textures on him, ect. We ended up moving and I havent had him checked out in quite a while but his neediness and his touchyness are at an all time high. What can you tell me about the sensory integration dysfunction. Im wondering if this is what the problem is.
  #7  
Old 10-25-2005, 10:20 AM
lanichan
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Location: Arizona
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Default Re: Hi I have a special lil one I love very much

Some of the things my son deals with that are related to his SID are his need for jumping on different things. Everywhere we go he has to jump on everything. At friends houses he go through the entire house and jumps on things and finds things to jump off of...including people if they are sitting on the floor. My son literally jumps up and down more than half his day. If he can't jump then he finds other ways to get that input.

My sons SID has a lot to do with his vision. Bright lights, like flashing lights, easily distract him and he becomes deaf when looking at them. That could be related to the autism though.

He still eats everything, including non-food stuff. Everything still goes in his mouth like a baby does. He smears food all over his body, especially pudding, mashed potato's. He has never used utensils and will take a fit when pushed to do so. I think that may have to do with the autism though. He likes to feel his food before eating it.

This is so hard to explain. There are so many factors to SID and all kids are different. I would go to your State Regional Center and ask to see a Occupational Therapist for an evaluation. In the beginning, I had to keep asking my son's OT what the heck this SID was all about. The best explanation he gave me was, what feels weird or even hurts us, feel good to them.

I hope this helps! Please keep us updated and good luck!
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  #8  
Old 10-25-2005, 10:27 AM
onehotmama
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Location: Arkansas
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Default Re: Hi I have a special lil one I love very much

Thanks.
  #9  
Old 10-25-2005, 11:21 AM
totallycharmed
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Join Date: Dec 2004
Location: Walker, La
Posts: 1,296
Default Re: Hi I have a special lil one I love very much

Hello all-
My son is five years old and has severeal diffferent diagnosis. He has a blood disorder and delays. Many theories still be kicked around about him but till he was three he caught every darn thign goign around adn it was never a simple cold. We spent a lot of tiem in and out of hosppitals. SO i totally understand. He has great fine motor skills but he is behign in mnay academic arenas ever after years of trying. But boy is he social. He is also beign a pain righ tnow with not lsitenign at all. Does anyones chidl sho is younger go through a infant development program my son did adn it was great. HE now has a IEP. There are a lot of federal lawas protecting children with challenges. IDEA i think is one fo the federal laws. Well just though iw oudl tell you all there are a few here and i would not trade my son for the world.-beth
  #10  
Old 10-29-2005, 03:56 PM
Nice1704
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Join Date: Dec 2004
Posts: 668
Default Re: Hi I have a special lil one I love very much

Hi Beth,
Sounds like your son is very lucky to have such a great Mommy to advocate for him. Adrienne has an IEP too thats how she gets to go to a private school.

almsah & Michele, it sounds like you have learned a lot about sensory integration issues. I think your kids are lucky to have such helpful informed Mommies too. Michele it sounds like your son is in a wonderful program.When I was a day care teacher I had one toddler in my class who had a special weighted blanket for nap time to help with SI issues. Its so hard to understand how everyone sees, hears, feels well just experiences things differently.

NavyWife19 I hope that your family will be lucky and your kids won't get adhd. I know it is hard having an issue and being concerned about passing it along. It was Adrienne's dad that had bipolar/adhd but my sister and I both have hormonal issues have had troubles achieving and maintaining pregnancy I worry that Adrienne will have these problems too. It is hard knowing she may but I guess all we can do is just hope our children will be as healthy and happy as possible.

I love Adrienne just the way she is and wouldn't trade anything about her.

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