Thank you very much for the information you have provided. I never thought of doing anything for a child before as i always thought that it would be difficult to base it upon somone who isnt able to comminicate their feelings to you.
However i do feel that the next best piece of info does come from those closest to you and as you've rightly pointed out it must be very difficult for you sister at this age to grasp the notion of everyday tasks that as sighted beings we find so easy. I will hopefully include this info into my studies.
Keep the ideas coming and dont worry any help is good enough for me and it looks like your thinking along the same lines as me too!
Hope to hear from you soon