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Hello there! I absolutely have to pipe in here. The gluten 'intolerance' they would be testing for is called Celiac Disease. It is very serious, (can result in malabsorption of nutrients, malnourishment, failure to thrive, thyroid problem, intestinal cancer) but can be managed with a lifelong adherence to a gluten-free diet. DS (26mos) was just diagnosed about 6-7 weeks ago.
He was never small. He was in the 95% for height and 75% for weight. Dropped down to the 50% for weight. (not bad at all) Weight loss was not really one of his symptoms.
In general, there are way too many symptoms to list here. His main symptom was vomiting, but you don't have to be physically ill to have the Disease. (I was tested after his Dx and I, too, am positive for the disease, with no symptoms.)
The GFCF diet is not specifically geared toward a Celiac. Technically, Celiac refers to just GF. Casein need not necessarily be avoided.
Celiac is alot more prevalent then you'd think. It effects 1 in 133 Americans, but only 1 in 4000 Americans have actually been diagnosed.
If you have any questions about it, just ask. I have TONS of information. And since this is so close to my heart, I will forever research more. And if it comes down to it that she does indeed have Celiac or even an intolerance to Gluten, it isn't the end of the world. DS has been thriving on his new diet. Has been gaining weight and can now even (almost) hold up his size 2T shorts without rolling the waistband. He is happier, too. And just seeing your child thrive is all the motivation you'd need! I can help with shopping lists and hints where to buy. It gets easier!
Hang in there. You are not alone!
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