[Nathan]

Endometriosis is a painful, chronic disease that affects 5 1/2 million women and girls in the USA and Canada, and millions more worldwide. It occurs when tissue like that which lines the uterus (tissue called the endometrium) is found outside the uterus -- usually in the abdomen on the ovaries, fallopian tubes, and ligaments that support the uterus; the area between the vagina and rectum; the outer surface of the uterus; and the lining of the pelvic cavity. Other sites for these endometrial growths may include the bladder, bowel, vagina, cervix, vulva, and in abdominal surgical scars. Less commonly they are found in the lung, arm, thigh, and other locations.

This misplaced tissue develops into growths or lesions which respond to the menstrual cycle in the same way that the tissue of the uterine lining does: each month the tissue builds up, breaks down, and sheds. Menstrual blood flows from the uterus and out of the body through the vagina, but the blood and tissue shed from endometrial growths has no way of leaving the body. This results in internal bleeding, breakdown of the blood and tissue from the lesions, and inflammation -- and can cause pain, infertility, scar tissue formation, adhesions, and bowel problems.

Here are some online resources:

Endometriosis.org - http://www.endometriosis.org/
Endometriosis.org is the global platform for the latest news on endometriosis. It provides up to date information on research into the disease, the latest evidence based treatment options, and an archive of articles by women with endometriosis who share their knowledge on how to cope with this disease. Endometriosis.org facilitates collaboration and information sharing between women with endometriosis (and their relatives), clinicians, scientists, and researchers to deliver the most up to date information about the disease that we have. It also has links to every national support group in the world.

The Endometriosis Association - http://www.endometriosisassn.org/

[tnmommie]

Thank you very much for these sites. i have this and so far it is winning at everything the doctor does to try and help me.

[Right_Writer]

After going through IVF/ICSI, having a difficult multiples pg and having a c-section with twins, I now have endo. My gyn can't figure out why but I get excruciating pain with AF every month. The pain is very bad and lasts for a few days, but the most painful of it is a 24-48 hour window. I have no other complications or symptoms. No one knows why I have this and I even had an appendectomy to rule that out. No meds help. The only things that seem to give me a small amount of relief are cold, ice packs, moving around (if I stay in bed and don't move, I'm in agony) and just taking things easy, but staying mobile. It's hard to do when you have two year old toddlers who don't understand why Mommy can't pick them up on those days. It's so frustrating.