[Jezebel_Jasmine]

I am a mother of one four year old with severe hypotonia and I can lift him most of the time. However when it comes to coming down the stairs my right foot seems to get most of the weight as I have a banister on my left side I hold on to. Does anyone have any ideas on how to carry my son different than over my right shoulder down the stairs?

I am all ears to ideas and even looked at my pages on lifting and carrying that I have...

thanks for listening
GOd bless you
jasmine

[QueenAngie]

Bless your heart, Jezebel Jasmine.
Your son must be a little ray of sunshine at your home.

I am not an expert in this area, but will share what I know.

My nephew is 22 and has CP. He is at the level of about a 4 yo,
but does not walk.
He is also the size of a man.
He is just one of those kids that everybody loves and a great hugger.
Nephew is also the #1 fan at all the school sports events.
He has an electric wc for accessability.

Purposely, my sis & her family moved to a one story home because of all the lifting.
Ramps are at the front and back doors.
Sis is the the point, she can barely lift him any more.
Her back is nearly ruined from all the lifting and trying to be the best Mom possible.
Her health has suffered for this.
If falls mainly on his Dad to handle the lifting now.

They do have a basement downstairs with one of those electronic chairs attached to the wall that goes up and down. Nephew does not spend a lot of time down the basement,
but he does have access, if he wishes to go down.



There are also vertical platform lifts. I noticed one of these outside a home
just this morning.

What happens if you fall, Jasmine? You will both go down and get hurt.
That is really scarey.

There are also small elevators that can go into homes, but those are $$$.

Your dear son will only grow larger and heavier as he gets older.
Is it possible for you to move to a one level home/apartment, wheelchair accessible,
with no stairs?

Please let us know what you decide.

(((Hugs)))

[mcmama]

Several summers ago, our church group built a stair ramp for a family whose daughter had been born with spina bifida. The girl was 7, weighed about 60 pounds, and carrying her had become impossible and dangerous for the mom. It wasn't much, but it made the difference. This was a child who could self propel very well in her wheelchair.

The day is coming when the four year old will grow too big to be lifted, so adaptive devices are a good thing to look into. Also having your home on one level as much as is possible.

I have carried two year olds weighing 40 lbs, and the balance over the one shoulder while holding onto the bannister on the other side is the best for balance. But over time, you will experience stress on your back, in your knees, neck, shoulders, and so on.

[Jezebel_Jasmine]

Thanks so much for the message and yes he is a blessing. Right now, Zechoriah is being fitted into a walker so it will not be too much longer he is walking on his own. He does help more now too with the weight and tries to assist me as much as he can. I am working out a lot to make sure to stay in shape for him that helps
Your nephew sounds neat too and I am really proud you put up something in your house for him that does not always happen with families.
I do not know a lot about CP but there are a few children I think that have it in my son's class in school.

God Bless you and thank you for being a blessing to me on here

Originally Posted by QueenAngie

Bless your heart, Jezebel Jasmine.
Your son must be a little ray of sunshine at your home.

I am not an expert in this area, but will share what I know.

My nephew is 22 and has CP. He is at the level of about a 4 yo,
but does not walk.
He is also the size of a man.
He is just one of those kids that everybody loves and a great hugger.
Nephew is also the #1 fan at all the school sports events.
He has an electric wc for accessability.

Purposely, my sis & her family moved to a one story home because of all the lifting.
Ramps are at the front and back doors.
Sis is the the point, she can barely lift him any more.
Her back is nearly ruined from all the lifting and trying to be the best Mom possible.
Her health has suffered for this.
If falls mainly on his Dad to handle the lifting now.

They do have a basement downstairs with one of those electronic chairs attached to the wall that goes up and down. Nephew does not spend a lot of time down the basement,
but he does have access, if he wishes to go down.



There are also vertical platform lifts. I noticed one of these outside a home
just this morning.

What happens if you fall, Jasmine? You will both go down and get hurt.
That is really scarey.

There are also small elevators that can go into homes, but those are $$$.

Your dear son will only grow larger and heavier as he gets older.
Is it possible for you to move to a one level home/apartment, wheelchair accessible,
with no stairs?

Please let us know what you decide.

(((Hugs)))

[Jezebel_Jasmine]

Thank you both for helping me...We really got to stick together as moms for sure and I appreciate that. Please do not hesitate to message me with prayer requests either at any time

God Bless you both

[LilMomma]

HI,
I understand your pain! My daughter is five and has Rett Syndrome w/ severe hypotonia. She can't support herself at all. Fortunately we do not have a two story home. I did fall down the front steps a couple years ago while carrying her, she was fine she landed on me. So hubby and some friends built a ramp for us. Wish I had some advice for you. Maybe you could see if insurance would cover some type of lift for him to use?