[Michelespreemies]

I know that I am alone here with having 2 hemophiliac children and I'm not sure if any one you all even have 1. Connor was changed over to a Human Plasma clotting factor today and I have been checking it out right and left.

First of all Humate-P is a plasma that is used for Classic Hemophilia and just back in 99 was approved for treatment of vWD. I read the report that the FDA put out when they approved it and something worries me alot about it.

First of all here is the site and I will quote a part that really scares me alot. http://www.fda.gov/bbs/topics/ANSWERS/ANS00947.html

The 4th paragraph says this...

Humate-P is purified from pooled human plasma from many donors and contains the clotting proteins deficient or defective in vWD disease, factor VIII and von Willebrand factor. It is pasteurized by heat treatment, a highly effective FDA approved process for deactivating many viruses that cause disease, including AIDS and certain types of hepatitis. In addition plasma donors are screened carefully. However, because the product is made from human plasma, the risk for the transmission of blood-borne viruses, while very low, cannot be totally eliminated.

I know I sound paranoid, but I think I have to be with children that bleed and bleed and bleed. Connor really scares me with this.

I know that there is and always will be a chance that Connor and Carlee can contract something from the "human plasma" drugs that they take. I have accepted that much, but what I need to know is if the fear will ever go away.

[MJ7]

(((I'm sorry))), I can relate to fears anyway in regard to children's special needs. There is risk with so many things in life; getting into a car, having to give a child medication, sending your child to school... If we as moms dwell on the risks we will only create another problem; we may become depressed or overly paranoid and unnessisarily rob ourselves of many of the joys of being a parent.

When our first son was placed with us we were told he was hepatitis C positive. We prayed and prayed it was just his birthmother's anti-bodies, but it didn't do us much good to sit and worry. We prepared emotionally for the worse case senario we could think of. I researched and talked with medical professionals. The more information I got, the less scared I became. Our son ended up testing negative finally at 18 mo. I'm not suggesting you think the worst for your children by any means. What I'm suggesting is usually fear comes from not knowing as much about the "worst". Keep in mind too, medical companies get sued all the time. They need to put such disclaimers in writing to protect themselves.

Worrying is one of the hardest things about being a mom .