[malissa1514]

My daughter has Sickel Cell Disease. She's had 3 major attacks, been to the E.R many many times, and has to take penicillian the rest of her life! As you may know, Sickel Cell Disease attacks your immune system, and every major organ and muscle is effected by this. They won't see her at the emergency room unless her temp is over 101, then if not I have to keep her home from school and do home remedies for her aches and pains. She's been turned down for disability 3 times all ready. People keep telling she is eligible, but when I call lawyers, they tell me kids won't get it unless there is a severe problem, like missing limbs or blindness. I'd like her to be on disability so when she's older and has to take off work, she'll have something to fall back on. She's 11 now, hates to miss school, won't tell me all the time she's in pain, just so she won't have to miss school. Sickell Cell disease is a problem for my little girl, no kind of real help available for her.

[chullaby]

My daughter has Sickel Cell Disease and she has also had my problem with this disease. We have written a book about our family's journey dealing with this disease. You can find our book at www.mysicklecell.info. This book was written not only for those living with the disease but also to help family and friends understand what we have to go through and how they can be a help to us.
Take care

[gavin1126]

Originally Posted by malissa1514

My daughter has Sickel Cell Disease. She's had 3 major attacks, been to the E.R many many times, and has to take penicillian the rest of her life! As you may know, Sickel Cell Disease attacks your immune system, and every major organ and muscle is effected by this. They won't see her at the emergency room unless her temp is over 101, then if not I have to keep her home from school and do home remedies for her aches and pains. She's been turned down for disability 3 times all ready. People keep telling she is eligible, but when I call lawyers, they tell me kids won't get it unless there is a severe problem, like missing limbs or blindness. I'd like her to be on disability so when she's older and has to take off work, she'll have something to fall back on. She's 11 now, hates to miss school, won't tell me all the time she's in pain, just so she won't have to miss school. Sickell Cell disease is a problem for my little girl, no kind of real help available for her.

hello i am a mother of a child who was recently diagnosed with sickle cell beta thalessemia two years ago and he is currently 12 yrs of age and he recieves disability i didnt have to fight with the disability claims office i submitted my request who in return ask the doctors and teachers for knowledge regarding my sons status so my advice to you is keep continuing to fight for her disability my sons gets ssi which is a supplemental income based on mine i beleive she wont be able to recieve disability until she turns 18 because it will no longer be based on your income there are different types of disability payments you can recieve just do a little bit more research and homework.

[buddha]

WHEN ALL THINGS GO WRONG! PRAYER IS THE ANSWER !THERE IS A HERBAL ,THAT YOU MAY WANT TO TRY !MY NEPHEW DIED OF SIKEL CELL! BUT IF YOUR INTERESTED CONTACT MY E-MAIL FOR INFORMATION .I PROMISE NOTHING! BUT ITS WORTH IF ! LQUINONES27@CFL.RR.COM.IFYOUR INTERESTED.YOU MAY BE WANTING TO FIND OUT ABOUT THIS HERBAL !ONLY ONE OF A KIND !ANYWHERE!

[mcmama]

Sorry about your nephew - it is a horrible illness.

You might want to rethink having your email up on the forum - having it in public view you could attract unwanted and really nasty spam that could harm your computer. We have the ability to use private messages on this site, so anyone who wants to contact you privately can use those, and it protects your email.

[jamall83]

Originally Posted by malissa1514

My daughter has Sickel Cell Disease. She's had 3 major attacks, been to the E.R many many times, and has to take penicillian the rest of her life! As you may know, Sickel Cell Disease attacks your immune system, and every major organ and muscle is effected by this. They won't see her at the emergency room unless her temp is over 101, then if not I have to keep her home from school and do home remedies for her aches and pains. She's been turned down for disability 3 times all ready. People keep telling she is eligible, but when I call lawyers, they tell me kids won't get it unless there is a severe problem, like missing limbs or blindness. I'd like her to be on disability so when she's older and has to take off work, she'll have something to fall back on. She's 11 now, hates to miss school, won't tell me all the time she's in pain, just so she won't have to miss school. Sickell Cell disease is a problem for my little girl, no kind of real help available for her.

I JUST WANTED TO ASK YOU WHAT STATE ARE YOU FROM BECAUSE I WAS GETTING SOCIAL SERCURITY WHEN I WAS YOUR DAUGHTER AGE AND I DO NOW I KNOW SHE CAN GET IT THEY WILL TURN YOU DOWN AT FIRST AND AS YOU MAY KNOW SICKEL CELL CAN LEAD TO BLINDNESS AND MAKE SURE YOU HAVE ALL DOCTER PAPER WORK EXSPECIALLY FROM HER HEMOTOLOGIST. READING YOUR STORY MADE ME THINK WHEN I WAS YOUNG I GOT TUTOR MY EIGHT GRADE YEAR IN SCHOOL AS WELL AS TENTH AND ELEVENTH GRADE AND AS FOR THE ER NOT TREATING HER WHEN SHE GET SICK BECAUSE SHE DONT HAVE A TEMP IS WRONG CAUSE IF YOU WOULD LOOK INTO WHAT SICKEL CELL DISEASE IS IT WILL TELL YOU THAT SOMETIMES A PATIENT WONT HAVE A TEMP AND STILL BE IN A SERVER CRISIS I HOPE ALL GOES WELL

[Armen]

It's an inherited disease. Both parents give their child the sickle cell allele.
Sickle cell anemia is caused by an abnormal type of hemoglobin called hemoglobin S. Hemoglobin is a protein inside red blood cells that carries oxygen. Hemoglobin S, however, reduces the amount of oxygen inside the cells, distoring their shape. The fragile, sickle-shaped cells deliver less oxygen to the body's tissues, and can break into pieces that disrupt blood flow.