_community   discussion-forums

Families Discussion Forums

Closed Thread
 
Thread Tools    Search this Thread    Display Modes   
  #1  
Old 01-21-2006, 07:30 AM
cocotbo's Avatar
cocotbo
Senior Blogger
 
Join Date: Sep 2005
Posts: 2,754
Send a message via AIM to cocotbo Send a message via Yahoo to cocotbo
Default What are the differences?

As a parent of a special needs child, what are some of the differences you see between yourself and the parents of other children?
__________________
  #2  
Old 01-21-2006, 08:56 AM
WordsAplenty's Avatar
WordsAplenty
Family Member
 
Join Date: Oct 2005
Posts: 600
I have two hearing impaired children-- one is profoundly deaf and the other has a moderate loss (middle daughter can hear ants crawl!). This has forced me to slow down and appreciate the little victories in life a lot more. Everyone has milestones and accomplishments that they look for in their children. I do, too, but mine had to be scaled down a bit. When my daughter, Alia, said her first word at age 2, it was such a celebration. She's deaf, after all. There was a time when I thought I'd never hear the word "mama." Although I had (sorta) made peace with that, it was a sweet, sweet day the first time she called me by name! My oldest has the moderate loss. She has hearing aids and doesn't hear high-frequency sounds like |sh|. So... when she finally learned to read "sh," I cried. Hearing impairment has also taught me a new way of communicating. I've always been one to talk about everything-- never go to bed mad, let's talk it out, etc. Suddenly, I had kids who couldn't hear me and I could no longer rely on words. I was lost for a while. Then I learned that you can say so much without ever opening your mouth. I've learned the value of a smile, a touch. I've learned that you can say so many different things with a raise of an eyebrow. I've learned that eye contact and a slight nod or shrug can communicate a world of words. I've learned that words can only take you so far-- the real "talking" comes from the heart.
  #3  
Old 01-22-2006, 12:16 AM
KristynCrow's Avatar
KristynCrow
Senior Blogger
 
Join Date: Dec 2005
Posts: 24
I think there really isn't a tremendous difference between parents of special needs children and other parents. We love our children and want the best for them just like everyone else. The difference would be that our patience, devotion, faith, and courage is tested a bit more with these special kids. It's harder work. We learn to expect less but celebrate accomplishments more. We have to let go of the ego associated with our kids and love them unconditionally.

I love hearing other parents of special needs kids share their stories... they are so interesting. This is a real journey with hills and valleys that we have to take. It's great to feel understood by others who are experiencing similar frustrations..

  #4  
Old 01-22-2006, 03:55 PM
cocotbo's Avatar
cocotbo
Senior Blogger
 
Join Date: Sep 2005
Posts: 2,754
Send a message via AIM to cocotbo Send a message via Yahoo to cocotbo
Originally Posted by WordsAplenty
I've learned that words can only take you so far-- the real "talking" comes from the heart.
Well, I think that is pretty profound coming from a professional writer!
All parents must learn to grow into parenthood. (It isn't an easy job and there are no written instructions.) But it seems to me that you've had to grow significantly more as a parent because of your childrens' special needs.

Very profound and admirable. As a writer, I'm really trying to wrap my mind around what you went through.
__________________
  #5  
Old 01-22-2006, 08:03 PM
WordsAplenty's Avatar
WordsAplenty
Family Member
 
Join Date: Oct 2005
Posts: 600
Originally Posted by cocotbo
Well, I think that is pretty profound coming from a professional writer!
But it seems to me that you've had to grow significantly more as a parent because of your childrens' special needs.
Very profound and admirable. As a writer, I'm really trying to wrap my mind around what you went through.
Thanks, but you give me way too much credit! There were days when all I wanted to do was bury myself under the covers and make the world go away. It was a dark, dark time. But, you can only stay down for so long. After all, the world keeps turning no matter what is going on in our little universe.

The lessons I learned from my girls carried over into other parts of life. For example, it taught me that I was using words way too much with hubby. I had gotten into the habit of talking my way out of things, using words as a magic salve. The right words could make all the pain go away, they'd make everything alright... but then I wouldn't follow through. I've learned to keep my mouth shut sometimes and show, not tell. I think it has definitely helped my marriage.

It also helped my work-at-home situation. For years, I had been ignoring my love of writing. Instead, I was making candy wrappers and mother's bracelets and anything else I could sell online. I was always trying to "find myself." After learning of Alia's deafness, though, I just had to write. It was therapeutic. At first it was just therapeutic-- journaling, letters to God, etc. But then I sold some of the articles. My first writing $$$ came from articles about deafness. Some were just $12 jobs for Write for Cash, but my first "big break" was a $700 article to Woman's World magazine. Although it felt a bit wrong to benefit from my daughter's disability, it felt great to share our story with the world. Maybe another mother would recognize the signs in her child and get help sooner. Maybe a parent would learn the value of things unspoken. Anyway... after that I gave up candy wrappers, mother's bracelets, and all the rest.

The most important thing I learned from my girls, though, is to appreciate the little everyday miracles. I never gave much thought to hearing until I had kids who couldn't. Now I truly enjoy the sounds around me-- the birds chirping... the water trickling... a sweet 3 year old saying "I love you."

Okay... that got a little longer than I intended. It's just weird how things work out. You learn things you never thought you'd need to know-- and you're much stronger (and maybe even happier?) for it.

(By the way, I don't talk about my middle daughter nearly enough on here, but she's great. Her name is Hallah and she is 5. She has no hearing problems, no speech problems, no medical problems at all, thank God. She is suffering from "middle child syndrome," but we're working on it!)

Last edited by WordsAplenty : 01-22-2006 at 08:06 PM.
  #6  
Old 01-22-2006, 08:34 PM
cocotbo's Avatar
cocotbo
Senior Blogger
 
Join Date: Sep 2005
Posts: 2,754
Send a message via AIM to cocotbo Send a message via Yahoo to cocotbo
There are so many things that you mentioned that I could respond to but I think they would take us way off topic.

I don't have personal experience with a special needs child of my own, but a friend of mine has. Her marriage was on shaky ground when they found out she was pregnant and they managed to get their act back together. When the baby came, they knew she was special. She had developmental delays but she brought their family much closer together. Their other two children were just amazing with the baby as well.

The blessings that one baby brought to that family are incalculable.
It IS amazing how things work out.
__________________
  #7  
Old 04-11-2006, 11:28 PM
shazbo
Family Member
 
Join Date: Jan 2006
Posts: 642
my daughter is hard of hearing and has 2 hearing aids what she wears for school .she doesnt wear them at home or in summer holidays .to me i think she has quite good hearing but thats on a one to one . when shes with other children she is very easlier destracted like me and is to busy nosing what the other children are doing it broke my heart when i found out at age of 4. but she is top of class and some one to be proud off thats my daughter
  #8  
Old 04-12-2006, 01:07 PM
WordsAplenty's Avatar
WordsAplenty
Family Member
 
Join Date: Oct 2005
Posts: 600
Default Welcome to Holland...

This beautiful article has been all around the internet, but it's a perfect explanation of life with a differently abled child. Although it makes me cry everytime I read it, it's really worth reading. It makes me look at my kids with new eyes. See what you think...

http://www.our-kids.org/Archives/Holland.html
  #9  
Old 07-12-2006, 08:33 AM
mommartin
Family Member
 
Join Date: Jul 2005
Location: CA
Posts: 390
I have two special needs daughters and a son who is special but without the added needs. My oldest daughter has cerebral palsy and the other one has down syndrome. I don't think there is a whole lot of difference between parent with or without special needs. But I think we tend not to take things for granted that other parents do. Also the one thing that bothers me is when my daughter was having open heart surgery a friend was complaining about her daughters runny nose. I guess it is all in perspective.
__________________
Katie
Mother to 4 of God's little blessings.
Working from home www.stayinhomeandlovinit.com/katie
  #10  
Old 07-12-2006, 11:47 AM
Merrymom4's Avatar
Merrymom4
Family Member
 
Join Date: Dec 2005
Posts: 172
Thanks for sharing that article Misty! I just read it and I'm bawling like a baby. I always knew that rising a child with special needs would be tough, but that I was tougher. Lately though, I don't feel strong or tough. I just feel tired. The article made me want to look at the tulips and the windmills. Thanks again!
__________________
Christina
Christian Families Blog
Visit my website!

Closed Thread

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes
Signup for our free community and join the conversation with 450,396 registered users active members!
Username
Password
Email
Birth Date
Gender Female Male
Agree to terms of use.
Terms of Service | Privacy Policy | Unsubscribe | Blog For Us! | Be a Moderator! | Advertise with Us | Help